ROCHESTER • MONROE COUNTY • NEW YORK
Helping parents and caregivers find developmental disability services, care coordination, family advocacy, and community support close to home.
FIND SUPPORT FASTER
Select a topic below to explore local organizations and services that may support your family.
WHERE TO BEGIN
If you are seeking OPWDD services, begin with the Front Door. If you need help with school advocacy, family support, or community activities, explore the organizations below.
OPWDD Front Door: 1-866-946-9733
Read Our OPWDD Parent GuideOPWDD & CARE COORDINATION
County information about OPWDD, regional services, eligibility, and community-based supports.
Visit County Resources →Care management for eligible individuals with intellectual and developmental disabilities, including Life Plan development and service coordination.
Phone: 1-844-347-3168
Visit Prime Care →Care coordination and support connecting eligible individuals and families with services and community resources.
Phone: 1-888-977-7030
Visit Person Centered Services →FAMILY SUPPORT & ADVOCACY
Family education, disability advocacy, special education support, and certain OPWDD-funded family support programs. Program eligibility varies.
Phone: 585-546-1700
Visit Starbridge →Autism-focused family navigation, learning programs, workshops, recreation, and community connections.
Phone: 585-248-9011
Visit AutismUp →A Rochester-based center bringing together organizations and services supporting autistic individuals and their families.
Phone: 585-685-8300
Visit Golisano Autism Center →PARENT EMPOWERMENT & ADVOCACY
Explore organizations and programs that help families understand educational rights, strengthen advocacy skills, and become active voices in their communities.
Provides parent education, special education guidance, advocacy resources, and training to help families navigate the IEP process and support their children's educational needs.
Visit Starbridge →Official information about New York State special education regulations, parent rights, evaluations, IEPs, and dispute-resolution procedures.
Visit NYSED Special Education →Provides disability rights information and legal advocacy, including assistance with certain education-related disability rights issues. Eligibility and case selection criteria apply.
Visit Disability Rights New York →Offers free parent leadership training focused on advocacy, communication, civic engagement, and community leadership. Helps parents develop skills to create positive change for children and families.
Explore Greater Rochester PLTI →Prepare for your child's next IEP meeting with our free printable checklist. Organize your concerns, review important services, prepare questions, and keep track of next steps.
Download Free Parent IEP Checklist (PDF)COMMUNITY-BASED SERVICES
Supports for people with intellectual and developmental disabilities, including community programs, employment services, residential options, and other supports.
Phone: 585-271-0660
Visit The Arc of Monroe →Programs supporting people with developmental and physical disabilities, including clinical, educational, and community-based services.
Phone: 585-334-6000
Visit CP Rochester →Disability rights advocacy, independent living services, and information supporting inclusion and accessibility.
Phone: 585-546-7510
Visit Center for Disability Rights →ADDITIONAL INFORMATION
New York State publishes a Finger Lakes Family Support Services directory with information about participating agencies and programs. Services may have specific eligibility requirements and funding limits.
View Finger Lakes Family Support Directory